wild honey 7
Acrobat
Hi all…
I’ve been a U2 fan for a long time and I’m on interference since about 2 years I guess, but I don’t really post that much.
I thought I take this opportunity to tell you all a bit more about me .
I’m from Vienna, Austria but I feel in love with Dublin on my first visit 2 years ago and I subsequently moved over here last September and I still love every minute I get to spend in this magic city.
I’m a happy person and rarely seen without a smile but one thing that really pisses me off is that I have serious problems with my breathing systems. I almost died when I was born and my lungs got heavily damaged, I spend quite a lot of time in hospitals or doctor’s waiting rooms, my Mam did a lot for me to ensure that I can live a normal live today. I got a lift from Bono last September and he played ‘Miracle Drug’ for us and I guess we were some the first ones he told the story behind the song (about Christopher Nolan). That made me kinda realise how much my Mam did for me all those years and how incredibly lucky I was.
I’ve been tested negative 3 times for cystic fibrosis and they wanted to do a fourth test but I refused. I wouldn’t want to know if I had that or anything similar anyway, I wouldn’t want to change my life. At the moment my doctors seem to agree on that my whole immune system is over reacting and there’s not that much they can do about that. And right now it’s looking a lot better, since I’m living in Dublin my condition has improved a lot .
So I’m feeling alright on most days, but somedays I just feel different from everyone else. I mean I cough all the time and I have to blow my nose all the time…it’s like as if I constantly had the flu. And when I start coughing, people stare and that hurts – because I never know if they’re disgusted or maybe just worried about me. Or sometimes they’ll tell me to stop smoking…lol. Plus my voice still sounds a bit numbed from the time when I was younger and my condition was much worse, so I have to put a lot of effort in talking to people who are not used to my voice to make sure they understand what I’m saying.
I’m going back to Vienna for the weekend…right in time for U2’s gig on Saturday and that’s what’ll keep me up through painful medical treatment tomorrow…
I hope I’m not giving the impression that I feel sorry for myself or anything like that, I really love my life but I’m still hoping that one day someone will invent a little drug and I can live like everyone else.
I’ve been a U2 fan for a long time and I’m on interference since about 2 years I guess, but I don’t really post that much.
I thought I take this opportunity to tell you all a bit more about me .
I’m from Vienna, Austria but I feel in love with Dublin on my first visit 2 years ago and I subsequently moved over here last September and I still love every minute I get to spend in this magic city.
I’m a happy person and rarely seen without a smile but one thing that really pisses me off is that I have serious problems with my breathing systems. I almost died when I was born and my lungs got heavily damaged, I spend quite a lot of time in hospitals or doctor’s waiting rooms, my Mam did a lot for me to ensure that I can live a normal live today. I got a lift from Bono last September and he played ‘Miracle Drug’ for us and I guess we were some the first ones he told the story behind the song (about Christopher Nolan). That made me kinda realise how much my Mam did for me all those years and how incredibly lucky I was.
I’ve been tested negative 3 times for cystic fibrosis and they wanted to do a fourth test but I refused. I wouldn’t want to know if I had that or anything similar anyway, I wouldn’t want to change my life. At the moment my doctors seem to agree on that my whole immune system is over reacting and there’s not that much they can do about that. And right now it’s looking a lot better, since I’m living in Dublin my condition has improved a lot .
So I’m feeling alright on most days, but somedays I just feel different from everyone else. I mean I cough all the time and I have to blow my nose all the time…it’s like as if I constantly had the flu. And when I start coughing, people stare and that hurts – because I never know if they’re disgusted or maybe just worried about me. Or sometimes they’ll tell me to stop smoking…lol. Plus my voice still sounds a bit numbed from the time when I was younger and my condition was much worse, so I have to put a lot of effort in talking to people who are not used to my voice to make sure they understand what I’m saying.
I’m going back to Vienna for the weekend…right in time for U2’s gig on Saturday and that’s what’ll keep me up through painful medical treatment tomorrow…
I hope I’m not giving the impression that I feel sorry for myself or anything like that, I really love my life but I’m still hoping that one day someone will invent a little drug and I can live like everyone else.