Please help if you can with a prayer

The friendliest place on the web for anyone that follows U2.
If you have answers, please help by responding to the unanswered posts.
sallycinnamon78 said:
Thankyou so much, all of you... that's very kind and it means more to me than you can know. Thankyou :hug: you're all so nice.

I'm praying for you and your whole family right now - my Wife is extremely sick and has been for years - PLEASE keep all the faith that you have in your heart and when it runs out you can count on mine.
 
Thankyou so much, to you YBORCITYOBL, and to everyone else who has sent such kind wishes.

I'm so sorry to hear about your wife - to say that it is difficult to deal with doesn't even begin to sum it up, I know. Please stay in touch, and you can count on me to be a friend if you need someone to talk to. Thankyou again. :hug:
 
I'm so sorry to hear that,i know it must be very difficult for you and your family right now:( ...my thoughts and prayers go out to you and your family

shanae<3
 
sallycinnamon78 said:
Thankyou so much, to you YBORCITYOBL, and to everyone else who has sent such kind wishes.

I'm so sorry to hear about your wife - to say that it is difficult to deal with doesn't even begin to sum it up, I know. Please stay in touch, and you can count on me to be a friend if you need someone to talk to. Thankyou again. :hug:

Thank You and I will be here, I'm quite new at all of this but seeing such a huge community brought together by U2 is just unbelievable to me-thanks for the kind response you really brightened a "bad" day.
 
Thankyou. :) I appreciate it. The docs said my sister was supposed to be dead by now... she's still alive, kicking, and being a total pain in the arse. Thank Christ!

I told my little niece about these posts, because she was scared that nobody else cared about her Mummy (she's heard all the arguing over the phone with the docs, etc).

When I told my dear little Lucylamb what you guys had said, and read her some of the kind messages you'd left, she gave me a huge beaming smile. She's such a sweet and sensitive little girl and I know losing her mum is hurting her terribly in ways she can neither understand nor express.

Obviously it's not your job to cheer up my niece, or to support me or my sister, any of you - I know we all have problems of our own to deal with.

Still, you have all been fantastic... So THANKYOU. If I can ever do something to help you please do not hesitate to ask.:hug:
 
Last edited:
sallycinnamon78 said:
Thankyou. :) I appreciate it. I told my little niece about these posts, because she was scared that nobody else cared about her Mummy (she's heard all the arguing over the phone with the docs, etc).

When I told my dear little Lucylamb what you guys had said, and read her some of the kind messages you'd left, she gave me a huge beaming smile. She's such a sweet and sensitive little girl and I know losing her mum is hurting her terribly in ways she can neither understand nor express.


That's so sweet. It must be really tough for her, but maybe knowing that people all over the world really do care about her mum (and her too) will help her through.

And just remember we all care about you also. :hug:
 
wow, i just read through this whole thread. i am so, so sorry to hear about all this shit, and glad to hear there are still some options. my stupid problems mean nothing compared to this. i am definitely thinking of you and your sister, and her children, and your whole family.

:hug:
 
VertigoGal said:
god i still cant fucking imagine. again im really truly thinking of all of you. this post is pointless, but...just another :hug:

Hi VertigoGal,

It's nice to meet you. Thanks very much for your comments.Your post wasn't pointless at all - it was kind and thoughtful, and my family and I are really grateful for the words of encouragement.

It's hard to explain... but all the messages here have been a great source of comfort. The fact that you spent time reading through this miserable thread means a lot to me. By taking the time to respond, everyone here has been a big help to me. So :hug: right back atcha! Thanks. :)

Sally
 
Last edited:
Hey Sally,

How are YOU doing? I hope all is well with you and your family, especially your sister and her kiddliewinks. I hope, though that you take some time out every now and again to do something indulgent just for you.

Take care. Keep in touch re you sister's treatment, whenever you can. Thinking of you. a big group :hug: for you all.
 
Thankyou very much as always. :)

I have found an old pic of my sister and my little Lucymookins, her eldest daughter. Think the photo was taken several months ago, so my sis doesn't look as bony as she is now... I really like this one, so just thought I'd share it!
laaandpoose.jpg
 
What a lovely photo. Thanks so much for sharing it.
 
It's so weird seeing how much she's grown... I expect I've posted these in this thread before, but they were only taken 8 months ago or so...
Onthebottle.jpg

Badlydrawngirl.jpg


This one was about a month ago:
S4200007.jpg
 
Re: Do you mind if....

sallycinnamon78 said:


Thankyou MVD :hug:

I wanted to ask - would any of you mind if I copy some of your posts into my sister's blog? She's not a member of this forum, as I said before - but usually posts in her blog every day. I thought that if I posted the kind things you've said there, it might help her to think more postively as she will see them all the time. If anyone objects please let me know and I'll leave your comments out.

Thanks again, all of you, :hug:


Sorry I missed this post. I don't mind at all.
 
Hi friends.

I hope you're all doing well?

First: if you're already feeling miserable, don't read this: it won't cheer you up to say the least! I just wanted to warn you. There is no reason for me to inflict my woes on anybody, particularly those who are already in a mess: I know we all have our own problems to deal with. So run away now, if you feel the need.

I didn't want to tell any of you this before, as it is just immensely depressing, confusing, and completely lousy. I'm losing my last bloody marble and I wondered if anyone, anyone at all, has an idea on where to turn. After the last couple of days, I just cannot think straight.

My sister tried to kill herself last night, for the 2nd time in a few days. She took a combination of coproxamol (very strong painkiller, not being prescribed anymore as it is apparently responsible for 5% of deaths here), 6 Kepra (epilepsy medicine) and I don't know how many Tegretol (also epilepsy medicine).

Mum found out early this afternoon. My sister was in and out of consciousness all day, when she did finally come round she screamed a load of abuse at Mum, threw things at her boyfriend, and immediately passed out again. When I was there during the late afternoon, her breathing was shallow and she was vomiting bile while unconscious, then dry retching. I sat by her bedside for 2 hours, I then took my niece to the park so that she didn't have to see the worst. My sister half opened her eyes at one point - I was trying to talk to her and brought her water - but she wasn't lucid - she didn't even see me. She I think she's over the worst of it (I hope so). We were all scared to death. She's asleep now.

Harlow hospital (who caused her heart problems in the first place by refusing to operate when she was pregnant with Emily, and refusing to treat her haemorrhage afterwards) falsified her notes, and none of the specialists have helped us get official confirmation that she is dying. Harlow Hospital insist she has Munchausens, believes she's ill when she's not. Bloody strange, that. People don't lose 2 andf a half stone within 4 months by pretending to be ill.

The Social Services were called in by my nieces' moronic father (who had had numerous nervous breakdowns over the past 20 years and is not just severely depressed, but also seriously deranged). They are doing a 35week assessment on my sister. As we have no medical support, nobody believes any of he stuff about her illness. We had called an ambulance: we did want to do, but my Mum got nothing but abuse when she explained this to my half-conscious sister. If we had, though, I'm 95% certain she would have been sectioned, and the Social Services would be straight in there to take the kids away.

My sister tried this latest suicide bid while her new boyfriend was staying at Mum's house, last night. (My sister and little nieces live with my Mum.) He watched his mother die of cancer a year ago. She's told him a load of horseshit about treatment she's having. I emailed the specialist who she said referred her to the other specialists at Kings College Hospital. I'll post his reply to me here, I'd like to know what you guys think. We can't find anything out: patient confidentiality doesn't allow it if course, and my sister refuses to contact the specialists or give us written permission to do so.

I know that my sister is genuinely ill... she has a severe heart problem. (I think I went over this before - she initially went so her open heart surgery could be scheduled, but the malignancies were detected and they took priority.) I don't know anymore how much of the cancer prognosis is true. I don't wanna believe she's lying - although obviously I couldn't bear it if she did die - but I'm the only person left in my family that is inclined to believe more than half of it.

I'm stretched to breaking point and of course my poor mother, my Gran, and our 2 brothers are going insane with all this. I pointed this out to my sister the other day, and got told to fuck off.

:( :sad: :confused: :scream:
 
Last edited:
I'd be interested to find out - what do you think about the consultant's response to my email? I find it all very weird. I thought perhaps others would be able to analyse it better than I can. I just can't think objectively. I'd be really appreciative if anyone has time to tell me there thoughts. I can't tell my arse from my elbow at the moment so really have no idea what else i can do.

A copy of my email to the doc:

Dear Dr *edited*,

I am Beth ******* 's elder sister, Sara. I am not asking you to divulge any personal information about Beth, of course. As I have worked in Pychology I am fully aware of the patient/doctor confidentiality agreement, which I obviously understand and respect. I am sorry to trouble you, as I am sure that you are a very busy man with many patients to worry about and to help. However, I know for a fact that there are several problems that you have not been told about in Beth's case. The futurre of two young infants, Beth's life, and my entire family's sanity is at stake here.

None of what has occurred over the last few months makes any sense whatsoever. Beth has been removed from her GP's list. This happened in February. Since then, the other surgeries in the area have refused to take her on. I would like to point out that my sister has severe epilepsy (as you know), requiring 3 - 4 tablets a day to keep it under control. In addition, she has had asthma since she was a child, and has been prescribed Ventolin from infancy onwards. These are obviously medicines that she needs in order to survive, and now that Beth has nobody willing to prescribe them, she is frequently fitting and passing out. She now has to go without these necessities, not to mention the strong possibilty that her children may be taken away in the very near future.

The fact is that the Social Services are visiting us on Monday, for a fourth time. They have no proof that Beth is ill, and are attempting to take the children into care unless they recieve official medical confirmation that she is genuinely sick. Emily was 1 two weeks ago, and Lucy is just over 2 and a half years old now. The Princess Alexandra Hospital has decided she has Muncahausens, and as nobody has been bothered to record what has occurred since, if it goes to court, we have absolutely nobody to speak for us professionally.

Harlow Hospital does not seem to be bothered about the minor detail that they have done no tests to check this... not to mention falsifying her records continously.We have no experts - or amatuers, for that matter, which would be better than nothing - to turn to. The situation our family is in is absolutely appalling, to say the least, and this is no fault of our own.

I am utterly disgusted at the way we have been treated, though not by your good self. Although I realise that you cannot share private information with me, I think it is incredibly important that you are aware of what's happened. As I've been told that you are Head of Ethics, I thought it best to ask your advice, and would be grateful for your personal opinion on where we should go from here.

Therefore, I do hope that you could spare me a few minutes to PLEASE advise me as to what my family should do, as you are the only medical contact we have. That's not asking for any confidential info whatsoever - that would, of course, be wrong. I believe it is also wrong that she is given no proof whatsoever of her illness, has never had the tests she ought to have had a long time ago to confirm this, that she has no GP and is unable to find one, that she cannot so much as get a referral to the MacMillan nurses, has not been considered formally for any form of treatment, and most sickeningly of all, may lose her children due purely to the incompetence of the Health Service, which has offered no evidence to back her up. If she is genuinely terminally ill, that is not only wrong, it is downright disgusting, unethical, negligent, and fraudulent, not only of the hospital in Harlow, but of the NHS in general.

I do hope that I have not come across as being rude or brusque. In truth, I am at the end of my tether. This whole situation is beyond ridiculous. My younger sister is extremely ill, I am possibly about to see my nieces put into fostering or childrens homes, and the NHS does not appear to care one way or the other. I cannot sit back and watch my younger sister die and my nieces lives ruined.

Thankyou very much for your time; and best wishes.

Sincerely
Sara ***


His response:

>Subject: Re:Beth (NOT a request for confidential info)
>Date: Tue, 25 Jun 2005 18:26:29 EDT
>
>Dear Ms ,
>
>Thankyou for your email. I do not understand why Beth cannot speak for
>herself. If she needs a report to be sent to any particular doctor or other agency
>then she needs to ensure that person writes to any of he specialist advisers
>with her written permission and a report will I am sure be forthcoming.
>
>She has a right to be under the care of a GP and if she is having difficulty
>with this then she should approach the Practitioner Services Unit (address, etc) and if there are still
>difficulties identifying a GP who will accept her then approach 'Allocations',
>Practitioner Services Unit at the same address.
>
>Clearly you all have a difficult situation and I hope Beth can ensure she
>has the GP support she deseves.
>
>Dr)
 
Sally, I am really sorry that you are going through this. :hug: Everyone in the hospital seems to be making this out to be a minor thing and obviously it's not. I find it sad that you wrote this long email to him and he seems to just brush it right off. I mean what is wrong with these doctors?! Can you get a lawyer or something? I'm not sure what else to say. :hug: :(
 
Thanks all. :hug: I guess nobody really knows what to say to all this. I don't either, to be honest. It's just really tough to handle.

I don't see any way of resolving this. We feel useless seeing her in pain, it's horrible; she's my baby sister, even if she is a daft lump of 22. I can't believe that she would put us all through this by lying about the situation... the severity of her illness... but then, I would also NEVER have believed that she would attempt to take her own life, twice, when she has two baby daughters.

She's just being so ridiculous. All it would take to get any necessary treatment started - if there is any that we don't know about yet - is her signature. At the very least, we could get her medicated properly and call on the MacMillan nurses to make her a comfortable as possible. Without a GP, we can't get any home help at all. It's insane. Mum is losing her mind. I can't afford to do the same. They need me.

My Lucylamb (eldest niece) said to me sadly today 'Mummy won't sing me a song at bedtime anymore'. I nearly howled. 'Grandma' offered to sing her a song - but it's not the same, is it, especially when you are under the age of 3.

This would finish Mum off completely. How the hell am I supposed to explain all this to Lucy and Emily later on? If, God forbid, my sister keeps doing this, she'll end up either succeeding in killing herself, or seriously damaging herself and having to live as a vegetable. So what happens when Lucy's older, and asks me why her mummy left her, instead of getting emotional support and medical care? When Emily asks me why her mummy didn't even TRY to get treatment and get well, or at the very least, have more time with her children? :no:

I pray it won't come to that but I just see no other way this situatoin will change, unless a miracle is on the cards.
:scream: :scream: :scream: :scream:
 
Last edited:
Back
Top Bottom